Tuesday, September 4, 2012
Woke up blind one sunday morning
Well I wish I were kidding but nope I woke up blind in my right eye on Sunday morning. I can see shapes and some light but contacts don't help and everything was blurry. I met with a doc within a few hours. Then was sent to an emergency MRI. They thought I might have a blood clot and was bleeding in my brain or a brain tumor. It was freaky. The MRI, which I usually hate, was actually a nice break. they wrapped me in warm towels and a soothing wash cloth across my eyes. The techs were funny and sweet. I was sent home to wait for a call, and that wait felt long. The doctor called within a few hours and said it wasn't a tumor and it wasn't blood clot but that I had probably they thought retrobulbar optic neurotitis. My Dad calls this mini-guillame barre. The optic nerve is enhanced or affected. So it has shut down. The usual treatment is nothing and the blindness can last for months.
They put me on a huge amount of steroids for three days hoping to speed healing but at best I may regain my eyesight in a month. I may not, but one blurry eye isn't the thing that looms. Apparently this is highly related to MS. So I undergo several more rounds of testing because I may have MS. They will be searching for tell tale proteins that spell the possibility of being periodically ravaged by some virus gone insane. Where literally shifts in weather could rob me of my ability to walk. That is no fun to think about.
The worst part actually hasn't been the bleary eyed vision but the tests. They trigger migraines. Big massive gnarly migraines. Monday and Tuesday I was out for the count all day not because I couldn't see but from the headaches.
I have another MRI scheduled and visits with specialists.
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